Research outputs

The publications and other outputs from our CSEP researchers.

Find more details on individuals' publications please check their staff profiles.

2023 publications

Books

Giordano, S. Children and Gender. Ethical issues in the clinical management of transgender and gender diverse youth from early years to late adolescence. Oxford University Press, 2023
Brassington, I. The Private Life of the Genome: Genetic Information and the Right to Privacy (London: Routledge, 2023)

Journal Articles

Dal-Ré, R., Voo, T. C. & Holm, S., Adaptive, platform trials assessing therapies for hospitalized COVID-19 patients: Informed consent forms omitted a few important elements of information 12 May 2023, In: Journal of global health. 13, p. 06019
Holm, S., Bioethics Without Theory? 28 Jul 2023, (E-pub ahead of print) In: Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees. p. 1-8 8 p.
Fairgrieve, D., Borghetti, J-S., Dahan, S., Goldberg, R., Halabi, S., Holm, S. & Howells, G., Comparing No-Fault Compensation Systems for Vaccine Injury 30 Apr 2023, In: Tulane Journal of International & Comparative Law. 31, 1, p. 75-118
Holm, S., Equality of Opportunity in Sport 24 Jun 2023, Handbook of Equality of Opportunity. Sardoč, M. (ed.). Cham: Springer Nature, p. 1-16 16 p.
Holm, S. & Warrington, D. J., Frailty as a Priority- Setting Criterion for Potentially Lifesaving Treatment-Self- Fulfilling Prophecy, Circularity, and Indirect Discrimination? 24 Jan 2023, In: Cambri dge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees. 32, 1, p. 48-55 8 p
Dal-Ré, R., Voo, T. C. & Holm, S., How WHO Solidarity Plus trial participants in countries on four continents are informed in writing 20 Jan 2023, In: Journal of global health. 13, 9 p., 04012.
Dal-Ré, R., Voo, T. C. & Holm, S., Leading pharmaceutical companies lacked transparency on clinical trials' informed consent forms 28 Aug 2023, (E-pub ahead of print) In: Journal of Clinical Epidemiology.
Holm,S.,Research Ethics in Exceptional Times: What Lessons Should We Learn from Covid19? 1 Jan 2023, Medical Research Ethics: Challenges in the 21st Century. Zima, T. & Weisstub, D. N. (eds.). Cham: Springer Nature, p. 355-366 12 p. (Philosophy and Medicine; vol. 132).
Hofmann, B., Thoresen, M. & Holm,S.,Research Integrity Attitudes and Behaviors are Difficult to alter: Results from a ten Year Follow- up Study in Norway 5 Jan 2023, In: Journal of empirical research on human research ethics . p. 15562646221150032
Holm, S., Some Problems with the ‘It Has Been Decided That You Will Die and Are No Longer in Need of Your Organs Donor Rule’ 1 Feb 2023, In: The American Journal of Bioethics. 23, 2, p. 26-28 3p.
McNamee, M., Anderson, L. C., Borry, P., Camporesi, S., Derman, W., Holm, S.,Knox, T. R., Leuridan, B., Loland, S., Lopez Frias, F. J., Lorusso, L., Malcolm, D., McArdle, D., Partridge, B., Schramme,
T. & Weed, M.,Sport- related concussion research agenda beyond medical science: culture, ethics, science, policy 3 Mar 2023, (E-pub ahead of print) In: Journal of Medical Ethics. jme- 2022-108812.
Ploug, T. & Holm,S.,The right to a second opinion on Artificial Intelligence diagnosis- Remedying the inadequacy of a risk-based regulation 1 Mar 2023, In: Bioethi cs. 37, 3, p. 303- 311 9 p.
Frith, L.,Bringing context into ethical discussion: what, when and who?, 1 Jun 2023, In: Journal of Medical Ethics. 49, 6, p.375-376 2 p.
McMillan, J. & Frith,L.,Broadening the debate: the future of JME feature articles 22 Feb 2023, In: Journal of Medical Ethics.
Frith,L., Democratic Justifications for Patient Public Involvement and Engagement in Health Research: An Exploration of the Theoretical Debates and Practical Challenges 1 Aug 2023, In: The Journal of Medicine and Philosophy. 48, 4, p. 400-412 13p.
Collins, M., Mazzei, M., Baker, R., Morton, A., Frith,L.,Syrett, K., Leak, P. & Donaldson, C., Developing a combined framework for priority setting in integrated health and social care systems 21 Aug 2023, In: BMC Health Services Research. 23, 1, p. 879
Teodorowski, P., Rodgers, S. E., Fleming, K., Tahir, N., Ahmed, S. & Frith, L.,Exploring how to improve the involvement of Polish and South Asian communities around big data research. A qualitative study using COM-B model 2023, In: Interna tional Journal of Population Data Science. 8, 1, 17.
Woolfall, K., Paddock, K., Watkins, M., Kearney, A., Neville, K., Frith, L., et al, Guidance to inform research recruitment processes for studies involving critically ill patients 20 Aug 2023,(Accepted/In press) In: Journa l of the Intensive Care Society.
Loria‐Rebolledo, L. E., Watson, V., Hassan, S., Gabbay, M., Tahir, N., Hossain, M., Goodall, M. & Frith,L.,Public contributors' preferences for the organization of remote public involvement meetings in health and social care: A discrete choice experiment study 1 Feb 2023, In: Health Expectations. 26, 1, p. 146-159 14 p.
Teodorowski, P., Rodgers, S. E., Fleming, K., Tahir, N., Ahmed, S. & Frith, L., 'To me, it's ones and zeros, but in reality that one is death': A qualitative study exploring researchers' experience of involving and engaging seldom-heard communities in big data research 1 Apr 2023, In: Health expectations : an international journal of public participation in health care and health policy. 26, 2, p. 882-891 10 p.
d'Elia, A., Gabbay, M., Rodgers, S., Kierans, C., Jones, E., Durrani, I., Thomas, A. & Frith, L.,Artificial intelligence and health inequities in primary care: a systematic scoping review and framework 30 Nov 2022, In: Family Medicine and Community Health. 10, Suppl 1, e001670.
Redhead, Fovargue, Frith, Chiumento, Draper. (2022) Relationships, Rights, and Responsibilities: (Re)viewing the NHS Constitution for the post- pandemic ‘new normal’, Medical Law Review, Volume 31, Issue 1, Winter 2023, Pages 83–108, fwac028, doi.org/10.1093/medlaw/fwac0 28.
R (Gardner andHarris) vSecretary ofState for Healthand Social careand Others[2022] EWHC 967: Scant regard for Covid-19 risk to care homes Moore, V.L. & Graham, L. D., 8 Nov2022, In: Medic al Law Review. 10 p.
From Clinical to Judicial Decision- Making, and Back Again in Bell v Tavistock? Preparing for the Legacy of Court Involvement in Gender Care for Minors Garland, F.,Horowicz, E., Dimopoulos, G. & Taylor- Sands, M., 18 Jun 2023, In: Medic al Law International. Intersex Activism, Medical Power/Knowled ge and the Scalar Limitations of the United Nation Garland,F., Lalor, K. & Travis, M., 17 Jul 2023, In: Human Rights Law Review.
Samantha Thimmaya v Lancashire NHS FoundationTurst v Mr Firas Jamil Stanton,C., 2022, In: Me dical Law Review. 30, 1, p.150-157The Case for Reframing Known Donation Gilman,L.& Nordqvist, P., 23 Jan2023, In: Human Fertility.
‘Direct-to- consumer genetic testing and the changing landscape of gamete donor conception: key issues for practitioners and stakeholders’ Gilman, L., Redhead, C., Hudson, N., Fox, M., Nordqvist, P., MacCallum, F., Kirkman- Brown, J. & Frith, L., 20 Sept 2023, Reproductive BioMedicine Online.
Ken Pang, Fintan Harte, Simona Giordano, Noah Riseman, Campbell Paul, ‘Exploratory psychotherapy: when is psychotherapy a form of conversion”, The Lancet, forthcoming
Simona Giordanoand Ed Horowicz, “Gender-affirming surgery for transgender Adolescents: Ethical and legal considerations”, Best Practice & Research Clinical Obstetrics and Gynaecology, Feb 2023; 86:102295. doi: 10.1016/j.bpobg yn.2022.102295. Epub 2022 Dec 16. PMID: 36641249.
Ken Pang, Fiona Kelly, Michelle Telfer, Simona Giordano, “Parental consent and the treatment of trans youth: the impact of Re Imogen”, Medical Journal of Australia, 216, 5, 2022, pp.219-21
Lewis, J., & Holm, S. (2023). Towards a Concept of Embodied Autonomy: In what ways can a Patient’s Body contribute to the Autonomy of Medical Decisions? Medicine, Health Care and Philosophy 26 (3): 451-463. doi: 10.1007/s11019-023-10159-7
Holm, S., Lewis, J., & Dal-Ré, R. (2023). Equipoise, Standard of Care, and Consent: Responding to the Authorisation of New COVID-19 Treatments in Randomised Controlled Trials. Journal of Medical Ethics 49 (7): 465-470. doi: 10.1136/medet hics-2022- 108182
Lewis, J., & Holm, S. (2023). What should recognition entail? Responding to the reification autonomy and vulnerability in medical research. Journal of Medical Ethics 49 (7): 491-492. doi: 10.1136/jme-2023-109003
Lewis, J., & Holm, S. (2022). Patient Autonomy, Clinical Decision Making, and the Phenomenological Reduction. Medicine, Health Care and Philosophy 25 (4): 615-627. doi: 10.1007/s11019-022-10102-2
Hosseini, M., Lewis, J., Zwart, H., & Gordijn, B. (2022). An Ethical Exploration of Increased Average Number of Authors Per Publication. Science and Engineering Ethics 28 (3): 1-24. doi: 10.1007/s11948-021-00352-3
Rebecca Bennett& Panagiota Nakou, ‘The risk of normative bias in reporting empirical research: Lessons learned from prenatal screening studies about the prominence of acknowledged limitations’ Theoretical Medicine and Bioethics (accepted and forthcoming 2023).
Rebecca Bennett& Fiona Ulph, ‘Psychological and ethical challenges of introducing whole genome sequencing into routine newborn screening: Lessons learned from existing newborn screening.’ The New Bioethics 29 [1] 2023: 52-74.
Cunningham, J; Davies, N; Devaney, S; Holm, S; Harding, M; Neumann, V; Ainsworth, J, ‘The Application of Distributed Autonomous Organization Governance Mechanisms to Civic Medical Data Management" (2023) IET Blockchain, submitted
Neumann V, Davidge G, Harding M, Cunningham J, Davies N, Devaney S, Holm Set al. (2023) Examining public views on decentralised health data sharing. PLoS ONE 18(3): e0282257. https:// doi.org/10.1371/journal.pone.0 282257
Gareth Price, Sarah Devaney, Soren Holmet al, (2022) ‘Can Real-world Data and Rapid Learning Drive Improvements in Lung Cancer Survival? The RAPID-RT Study’ Clinical Oncology 34(6) 407-410, GS:6, 7% (IF 3.212)
A Mullockand E C Romanis, ‘Cryopreservation and Current Legal Problems: Seeking and Selling Immortality’, Forthcoming (accepted and in press) Journal of Law and The Biosciences, OUP.

Past publications

Brassington, I., What Passive Euthanasia Is, 11 May 2020, In: BMC Medical Ethics. (DOI: 10.1186/s12910-020-00481-7).
Brassington, I., How Not to Talk about Passive Euthanasia: A Lesson from India, 14 Jul 2020, In: Indian Journal of Medical Ethics. 7 p. (DOI: 10.20529/IJME.2020.75).
Eccleston-Turner, M. (ed.) and Brassington, I. (ed.), Infectious Diseases in the New Millennium: Legal and Ethical Challenges, May 2020, Dordrecht: Springer Nature. 253 p. (International Library of Ethics, Law, and the New Medicine (LIME); vol. 82).
Devaney, S., Healthcare Professional Standards in Pandemic Conditions: The Duty to Obtain Consent to Treatment, 8 Aug 2020, (Accepted/In press) In: Journal of Bioethical Inquiry.
Purshouse, C., Heywood, R., Miola, J., Cave, E. and Devaney, S., Laying the foundations for debate: Doctors fighting the COVID-19 pandemic should not be immune from negligence liability, 15 Jun 2020, (Accepted/In press) In: British Medical Journal.
Garland, F. and Travis, M., Temporal Bodies: Emergencies, Emergence, and Intersex Embodiment, 11 Jul 2020, (Accepted/In press) A Jurisprudence of the Body. 1 ed. Palgrave Macmillan Ltd, (Palgrave Socio-Legal Studies). (DOI: 10.1007/978-3-030-42200-4).
Garland, F. and Travis, M., Queering the queer/non-queer binary: problematising the "I" in LGBTIAQ, 2020, (Accepted/In press) The queer outside in UK law: recognising LGBTIQ people in the United Kingdom. Raj, S. and Dunne, P. (eds.). Palgrave Macmillan Ltd.
Giordano, S., ‘Secret Hunger: the case of anorexia nervosa’, Topoi, 2020 (public Sept 20).
Horwicz, E. and Giordano, S., ‘Gender Incongruence as a Condition Relating to Sexual Health: The Mental Health ‘Problem’ and ‘Proper’ Medical Treatment’, Droit et Cultures, in press.
Giordano, S. and Holm, S., Is puberty delaying treatment ‘experimental treatment’?, 11 Apr 2020, In: International Journal of Transgender Health. (DOI: 10.1080/26895269.2020.1747768).
Giordano, S., Child neglect, 2020, Sage Encyclopedia of Children and Childhood Studies. Sage Publications Ltd.
Giordano, S., ‘The use of fiction in philosophy: metaphor and philosophical analysis’, in Wanda Teays (ed), Reshaping Philosophy: Michael Boylan‘s Narrative Fiction, Springer, US, (forthcoming).
Holm, S., Controlled human infection with SARS-CoV-2 to study COVID-19 vaccines and treatments: bioethics in Utopia, 2 Jul 2020, In: Journal of Medical Ethics. (DOI: 10.1136/medethics-2020-106476).
Holm, S., A general approach to compensation for losses incurred due to public health interventions in the infectious disease context, 2020, In: Monash bioethics review. (DOI: 10.1007/s40592-020-00104-2).
Odell-West, A., Invention and the Human Embryo, 10 Jan 2020, In: Intellectual Property Quarterly. I, p. 1-19 19 p., 1.
Romanis, E. C., Begovic, D., Brazier, M. and Mullock, A., Re-Viewing the Womb, 29 Jul 2020, In: Journal of Medical Ethics. (DOI: http://dx.doi.org/10.1136/medethics-2020-106160).
Ulph, F., Dharni, N., Bennett, R. and Lavender, T., Consent for newborn screening: screening professionals' and parents' views, 4 Nov 2019, In: Public Health. 178, p. 151-158 8 p. (DOI: 10.1016/j.puhe.2019.08.009).
Brassington, I., On Rights of Inheritance and Bequest, 1 Jul 2019, In: Journal of Ethics. 23, 2 (DOI: 10.1007/s10892-019-09283-5).
Brazier, M. and Montgomery, J., 'Whence and Whither 'Modern Medical Law.' (2019) 70 (1) Northern Ireland Legal Quarterly 5-30.
Brazier, M., 'Reflections on an Accidental Journey' (2019) Journal of Medical Law and Ethics 96-109.
Giordano, S. and Harris, J., On Cloning, 2019, (Accepted/In press) New Routledge Encyclopaedia of Philosophy. (New Routledge Encyclopaedia of Philosophy).
Giordano, S., The importance of being persistent. Should transgender children be allowed to transition socially?, 15 Oct 2019, In: Journal of Medical Ethics. (DOI: 10.1136/medethics-2019-105428).
Giordano, S., ‘Anorexia nervosa. A case for exceptionalism in ethical decision-making’, Philosophy, Psychiatry and Psychology, 26, 4, 2019, pp.315-331. (DOI: 10.1353/ppp.2019.0047).
Glover-Thomas, N., The Vaccination Debate in the UK: Compulsory Mandate Versus Voluntary Action in the War Against Infection, 1 May 2019, In: Journal of Medical Law and Ethics. 2019, 1, p. 1 - 20 20 p (DOI: 10.7590/221354019X15538518338607).
Glover-Thomas, N., Therapeutic jurisprudence and mental health tribunals: changing patterns of demand and its impact, 2 Jan 2019, In: Journal of Social Welfare and Family Law. 41, 1, p. 103-125 23 p. (DOI: 10.1080/09649069.2019.1554798).
Holm, S., Let Us Assume That Gene Editing is Safe-The Role of Safety Arguments in the Gene Editing Debate, Jan 2019, In: Cambridge quarterly of healthcare ethics: CQ: the international journal of healthcare ethics committees. 28, 1, p. 100-111 12 p. (DOI: 10.1017/S0963180118000439).
Ploug, T. and Holm, S., The right to refuse diagnostics and treatment planning by artificial intelligence, 2019, In: Medicine, Health Care and Philosophy. (DOI: 10.1007/s11019-019-09912-8).